A special request for Emma Grace

I have been following the blog of a young mother with brain cancer. She has been very inspirational to me in the way she has coped with her illness. She is also the mother of a sweet little girl named Emma Grace who has autism and is a heart transplant recepient. Emma is in the hospital in very serious condition with a virus that is threatening her heart. Please keep her in your thoughts and prayers!!!

I'm not sure why I'm having problems posting the link as clickable but here it is anyhow...

http://especiallyheather.com/

Sweet 16

My baby girl turns 16 today!!! It's amazing to me that this day is already here. She won't alow me to make a big fuss but I'm going to anyhow. I'm off to buy her art pens and canvas and other art goodies and bake a cake.

Bone Density Scan

I got the results of my bone density scan. I'm happy to report I have very good bones :)

What happened to spring?

Wow it's HOT already! We're supposed to get up to 99 today! It feels like it went straight from barely spring to summer. It will probably cool off again, but it's a indication that the summer is almost here.

I had my second lecture test today. I think I did o.k. I had to miss two lectures last week for a Dr apt and waiting to sign for UPs to deliver my medication...so we'll see how I did.

I was able to successfully lower my Prednisone dose to 80 mg this week, so that is progress :) My blood work from the edicrinologist came back and I have borderline low normal vitamin D levels despite taking 2000mg daily, so they are going to supplement me with a prescription. I suspect my kidneys are not turning it into the active form of D. Vit D isn't really a vitamin, it's really a hormone so it isn't like other vitamins. I've been totally out of the sun too trying to avoid the medication effects of being oversensitve to sun so that might be part of it too. My THS thyroid level was low as well and we will get another blood test in 3 months to recheck that. I am feeling really good overall though!

Spring Music Program

Jake and Nick had their Spring Music Program today. It was so nice to go to the school and hear all the kids sing. Nick was so cute when his class did their songs. He knew all the hand motions. I wish I'd remembered to charge the video camera battery but it will be in my memory :)

It's been so lovely here the last few days! And I am continuing to feel really strong and healthy so I am very happy with the way life is going right now!